ALCStudies Journal

Advanced Labor & Cultural Studies Web Site & Blog

Tag Archives: Schizophrenia

We Need Some Human Help

Welcome to the Valentine’s Day installment.

We navigate our days these days watched and prodded by our non-human talismans of technology1. These constant companions prompt us with questions or suggestions under the guise of being interactive. One not-so-subtly pops up on my phone lately, like an annoying partner in an old comedy routine (Didya see, didya see? What? Huh? What? Huh?), with the ironic phrase We need some human help.

Knowing our days are numbered to a suddenly-definable sum (whether the Biblical three-score and ten, shorter or longer) focuses our attention remarkably on what is important and what is not. Having been informed that I am scheduled to leave this earth sooner than I planned, I confess to a certain sensitivity to having my time wasted. In the past year I have confronted what seems more than my share of dysfunctional officials, health insurance that fails to reassure, and medical care that feels anything but caring. I know I’m not the only one facing an individual Gethsemane, but since when has that been a real consolation? I have watched my friends and acquaintances at home and abroad wishing the cup would pass for all of us: the lady whose son was diagnosed with schizophrenia last year, a former colleague staying in a dissatisfying job for the health insurance, men and women seeking love and connection amidst the wasteland and darkling plain of fraught relationships. For some it proves too much to endure. We try to live our lives with a modicum of peace and happiness amidst Dickensian bureaucracy allied with bad technology, dysfunctional workplaces [bullshit jobs, ‘open’ offices], alienated lives and absurd trappings of so-called civilization. Human help indeed.

In your life you will know trouble, Jesus said, a phrase curiously absent from the dogma of positive thinking. Like too much sugar, being optimistically (if not relentlessly) positive can sweeten the appreciation of life or make it almost intolerable. Troubles exist in our lives whether we are rich or poor, privileged or marginalized, mentally-challenged or on the genius scale.

There are plenty of reasons to feel cynical and hopeless amidst the dehumanizing juggernaut of technology and capitalism, including an apparent media obsession with bad news and human failure. But being optimistic does not mean suspending our critical faculties or our humanity. I think it’s about time we fessed up, set aside our fear (or meanness or just plain obliviousness which technology so easily aids and abets2) and did what we can to ameliorate or sympathize with, rather than marginalizing, fellow human beings.

I don’t much care if you text, blog, tweet, e-mail or use a carrier pigeon. Mexican writer Carlos Fuentes writes about the dilemma of globalization and the need for human (and local) connection. Globalization and technology used exclusively in the service of profit threaten to undermine our sense of agency and make individuals feel expendable. If community is to be more than a marketing ploy and love not just a slogan, the primary job each of us in this world of our creation is to take back hope from the ashes and connect to our own hearts and the hearts of others . ### — DA

1See Shoshanna Zuboff’s recent, The Age of Surveillance Capitalism

2See emotional deskilling.

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It’s a Wonderful Lonely Life

The search for community and love with our fellow human beings (at least the ones who are not trying to kill us) is a hallmark1 of the season. This accounts for the popularity of films such as It’s A Wonderful Life. Nevertheless, the effort to pathologize normal human emotion and behavior marches on. On December 1st the Pittsburgh Post-Gazette reported a 3-million dollar CMU study funded by the NIH on ways to help older adults feel less lonely. In the same issue it reported a federal suit against the Pennsylvania Department of Human Services for improper incarceration of mentally-ill prisoners; including the use of solitary confinement. There is some connection here — or perhaps disconnection.

It is part of life to lose friends and loved ones through death, time and alienation. But apparently the way to address the problem in this age of connected isolation2 is no longer to have people who know and accept us to talk to us, pat us on the back, share a cup of coffee, kiss us on the cheek, or more (if we are romantically inclined). It’s to learn to meditate the loneliness away. Quoting David Creswell, the expert overseeing the CMU study, the Post Gazette states:

… the number of lonely older adults may be increasing, putting their overall health at greater risk, but the way to help them isn’t necessarily to connect them to more people.

The Carnegie Mellon University associate professor of psychology, funded with a $3 million grant from the National Institutes of Health announced Monday, hopes that training people in better relaxation and coping techniques will reduce their perception of being lonely.

Each of us is wired with a different need and capacity for being alone. The solitude of Thoreau and Muir and eastern religious mystics is not for everyone. Indeed, in this hyperconnected age of crowdsourcing, solitude itself has become suspect. Therefore, it’s enlightening to know that a problem that philosophers like Buddha and artists from Nietzsche and Kafka to Van Gogh have struggled with for thousands of years is simply one of perception. 

You’d think the widespread adoption of social networking applications like Facebook and Twitter over the Internet would help. But, as Olivia Laing writes in The Future of Loneliness in the Guardian:

 … the contact this produces is not the same thing as intimacy. Curating a perfected self might win followers or Facebook friends, but it will not necessarily cure loneliness, since the cure for loneliness is not being looked at, but being seen and accepted as a whole person – ugly, unhappy and awkward, as well as radiant and selfie-ready

It can be difficult enough to endure or learn to accept loneliness if we are mentally whole and emotionally intact (a relative proposition). How much worse if we are imprisoned and isolated with schizophrenia, depression or bipolar disorder. Yet in the absence of community resources and adequate policy, the mentally ill are generally shunned by society3. Mentally prisoners who have completed their sentence in the Commonwealth of Pennsylvania often remain in jail. Some have been placed in solitary confinement.  

The Disability Rights Network of Pennsylvania announced the suit Monday on behalf of Stephen Kline, 25, a onetime Allegheny County resident who now is an inmate at Mifflin County Jail; Gabriel Gamble, 30, a patient at Torrance State Hospital in Westmoreland County; and Matthew Christy, 26, a patient at Warren State Hospital in Warren County… 

The suit claims the state does not have enough beds in community-care programs for all of those needing autism and mental health services — more than 1,000 are waiting — and that people in jails and state hospitals face special obstacles to community care.

In 2013, the Disability Rights Network sued the Department of Corrections, alleging that the state misused solitary confinement for mentally ill prisoners. The state took corrective action..

Literature and popular culture abound with references to the plight of loneliness: 

The Loneliness of the Long-Distance Runner, Alan Sillitoe
The Heart is a Lonely Hunter, Carson McCullers
Alone Again, Naturally, Gilbert o’ Sullivan
Only the Lonely, Roy Orbison

Have we forgotten Robin Williams and his death only last year? As his character The World’s Greatest Dad states:

“I used to think the worst thing in life is to end up all alone. It’s not. The worst thing in life is to end up with people who make you feel all alone.”

We conveniently overlook the fact that gathering to celebrate the season of light and fellowship around the winter solstice originated in the need to to prepare for the long dark night together. Our hopes and fears is not just a phrase from a Christmas song. Can you identify the following excerpt from another holiday favorite?

When you’re alone, alone in the world…when you’re alone in the world.
Blown away leaves get blown in the world…swirled away leaves get swirled.
Listening to your heels as you walk, making a lonely clack.
You don’t know how it feels when you talk and nobody’s voice talks back
.4

I challenge you to read or listen to this without feeling a tear coming on.

All Is Forgiven

In It’s A Wonderful Life George Bailey’s penury, loneliness and imminent arrest bring him to the brink of suicide. At the end of the film when hope is restored (along with the missing eight thousand dollars), George’s brother, Harry, toasts him as ‘the richest man in town’. Harry does not toast George’s mastery of meditation and relaxation techniques to cope with loneliness. He toasts the fact that George’s friends and neighbors gathered around him in his time of need. They didn’t update their Facebook page, send tweets and begin Kickstarter campaigns. They showed up. — DA

1With a small h.

3Often due to policies designed to protect their rights. Listen to the enlightening WESA 12/10 interview with PA Congressman Tim Murphy , himself trained as a mental health professional.

4Click the link to read and hear this song with lyrics by Jules Styne and Bob Merrill (who went on to write music for Funny Girl).

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